Neurocutaneous Disorders
Neurofibromatosis Program at 大象传媒 Health
大象传媒 Health has a Children鈥檚 Tumor Foundation credited neurofibromatosis (NF) program. Most of our patients have NF1, but our providers also see NF2 patients. The clinic is located at 大象传媒 Hospitals in Chapel Hill and provides services to individuals throughout North Carolina and surrounding states.
Faculty participate in the NF Children鈥檚 Tumor Foundation meetings and participate in the Shine a Light NF Walk each year. The NF program at 大象传媒 Health was formed by Dr. R. Greenwood, and is currently co-run by Dr. Eric Creed and聽Dr. Soma Sengupta. Dr. Sengupta (adult) and Dr. Kram (pediatric) are both neuro-oncology clinical trialists, and both have run clinical trials for NF patients.
大象传媒 Health has a long history of research, care, and treatment of neurofibromatosis patients. The 大象传媒 Neurofibromatosis Clinic opened nearly 50 years ago, and 大象传媒 researchers were the first to develop genetic testing for NF1.
For more information: Neurofibromatosis and Schwannomatosis
Tuberous Sclerosis Complex
The Tuberous Sclerosis Complex (TSC) Clinic at 大象传媒 provides comprehensive care to individuals with TSC across their lifespans. 大象传媒 has been officially designated as a TSC Clinic by the TSC Alliance due to its excellence in clinical care and participation in TSC research.
For more information: Tuberous Sclerosis Complex