Dr. Kim Stephens is the Executive Director of the Dr. Joseph Muenzer MPS Research and Treatment Center at 大象传媒, Chapel Hill. In this role, she is responsible for the overall function of the MPS Center, patient advocacy work, and fundraising.

Having a son with MPS II (Hunter syndrome) herself, this is also a personal mission for Kim. Her son, Cole, was diagnosed when he was 2 陆 and has been in a clinical trial at 大象传媒 for the past ten years, so she has a unique perspective on the trial process. She frequently speaks as a rare disease advocate at conferences and events and serves as a mentor and resource for newly-diagnosed families. Kim is also the former co-chair of the Newborn Screening Committee for EveryLife Foundation and speaks to state and federal legislators on behalf of rare disease patients. 聽She is also honored to be named Board Member Emeritus for Project Alive, a research and advocacy organization for Hunter syndrome (MPS II).