{"id":2998,"date":"2024-07-09T13:40:00","date_gmt":"2024-07-09T17:40:00","guid":{"rendered":"https:\/\/www.med.unc.edu\/pediatrics\/muenzer-mps-center\/?page_id=2998"},"modified":"2025-03-04T12:36:34","modified_gmt":"2025-03-04T17:36:34","slug":"about-us","status":"publish","type":"page","link":"https:\/\/www.med.unc.edu\/pediatrics\/muenzer-mps-center\/about-us\/","title":{"rendered":"About Us"},"content":{"rendered":"<p><span class=\"TextRun SCXW154184495 BCX0\" lang=\"EN-US\" xml:lang=\"EN-US\" data-contrast=\"auto\"><span class=\"NormalTextRun SCXW154184495 BCX0\">The Muenzer MPS Research and Treatment Center at the University of North Carolina at Chapel Hill was\u00a0<\/span><span class=\"NormalTextRun SCXW154184495 BCX0\">established<\/span><span class=\"NormalTextRun SCXW154184495 BCX0\">\u00a0to advance research, treatment, and support for individuals with Mucopolysaccharidosis (MPS) and related lysosomal storage disorders. Founded in\u00a0<\/span><\/span><span class=\"TrackChangeTextInsertion TrackedChange SCXW154184495 BCX0\"><span class=\"TextRun SCXW154184495 BCX0\" lang=\"EN-US\" xml:lang=\"EN-US\" data-contrast=\"auto\"><span class=\"NormalTextRun SCXW154184495 BCX0\">November 2022<\/span><\/span><\/span><span class=\"TextRun SCXW154184495 BCX0\" lang=\"EN-US\" xml:lang=\"EN-US\" data-contrast=\"auto\"><span class=\"NormalTextRun SCXW154184495 BCX0\">, the Center was developed under the leadership of Dr. Joseph Muenzer, a pioneering expert in MPS, with a mission to address the complex needs of MPS patients and their families. Although the new clinic space was unveiled in November 2024, the Muenzer MPS Center team has been active in clinical care and clinical trials for MPS for many years.<\/span><\/span><span class=\"EOP SCXW154184495 BCX0\" data-ccp-props=\"{}\">\u00a0<\/span><\/p>\n<p><span class=\"TextRun SCXW213099847 BCX0\" lang=\"EN-US\" xml:lang=\"EN-US\" data-contrast=\"auto\"><span class=\"NormalTextRun CommentStart CommentHighlightPipeRestRefresh CommentHighlightRest SCXW213099847 BCX0\">Our center offers the following specialized services through consultations:<\/span><\/span><span class=\"EOP CommentHighlightPipeRestRefresh SCXW213099847 BCX0\" data-ccp-props=\"{}\">\u00a0<\/span><\/p>\n<ul>\n<li data-leveltext=\"\uf0b7\" data-font=\"Symbol\" data-listid=\"85\" data-list-defn-props=\"{&quot;335552541&quot;:1,&quot;335559685&quot;:720,&quot;335559991&quot;:360,&quot;469769226&quot;:&quot;Symbol&quot;,&quot;469769242&quot;:[8226],&quot;469777803&quot;:&quot;left&quot;,&quot;469777804&quot;:&quot;\uf0b7&quot;,&quot;469777815&quot;:&quot;multilevel&quot;}\" data-aria-posinset=\"1\" data-aria-level=\"1\"><b><span data-contrast=\"auto\">Evaluation and Management<\/span><\/b><span data-contrast=\"auto\">:\u202fComprehensive assessments and ongoing care for\u00a0<\/span><span data-contrast=\"auto\">MPS\u00a0<\/span><span data-contrast=\"auto\">individuals with MPS<\/span><span data-contrast=\"auto\">.<\/span><span data-ccp-props=\"{}\">\u00a0<\/span><\/li>\n<li data-leveltext=\"\uf0b7\" data-font=\"Symbol\" data-listid=\"85\" data-list-defn-props=\"{&quot;335552541&quot;:1,&quot;335559685&quot;:720,&quot;335559991&quot;:360,&quot;469769226&quot;:&quot;Symbol&quot;,&quot;469769242&quot;:[8226],&quot;469777803&quot;:&quot;left&quot;,&quot;469777804&quot;:&quot;\uf0b7&quot;,&quot;469777815&quot;:&quot;multilevel&quot;}\" data-aria-posinset=\"1\" data-aria-level=\"1\"><b><span data-contrast=\"auto\">Genetic Counseling<\/span><\/b><span data-contrast=\"auto\">:\u202fHelping individuals and families make informed decisions about their health<\/span><span data-contrast=\"auto\">\u00a0and family planning<\/span><span data-contrast=\"auto\">\u00a0th<\/span><span data-contrast=\"auto\">r<\/span><span data-contrast=\"auto\">ough comprehensive support, education, and guidance on the genetic and psychosocial implications of MPS.<\/span><span data-ccp-props=\"{}\">\u00a0<\/span><\/li>\n<li data-leveltext=\"\uf0b7\" data-font=\"Symbol\" data-listid=\"85\" data-list-defn-props=\"{&quot;335552541&quot;:1,&quot;335559685&quot;:720,&quot;335559991&quot;:360,&quot;469769226&quot;:&quot;Symbol&quot;,&quot;469769242&quot;:[8226],&quot;469777803&quot;:&quot;left&quot;,&quot;469777804&quot;:&quot;\uf0b7&quot;,&quot;469777815&quot;:&quot;multilevel&quot;}\" data-aria-posinset=\"1\" data-aria-level=\"1\"><b><span data-contrast=\"auto\">Enzyme Replacement Therapy\/Infusion Therapy<\/span><\/b><span data-contrast=\"auto\">:\u202fTreatment options to help slow disease progression.<\/span><span data-contrast=\"auto\">\u00a0The center has dedicated pediatric-friendly infusion rooms and a staff of specially trained nurses<\/span><span data-contrast=\"auto\">\/providers to administer these therapies.<\/span><span data-ccp-props=\"{}\">\u00a0<\/span><\/li>\n<li data-leveltext=\"\uf0b7\" data-font=\"Symbol\" data-listid=\"85\" data-list-defn-props=\"{&quot;335552541&quot;:1,&quot;335559685&quot;:720,&quot;335559991&quot;:360,&quot;469769226&quot;:&quot;Symbol&quot;,&quot;469769242&quot;:[8226],&quot;469777803&quot;:&quot;left&quot;,&quot;469777804&quot;:&quot;\uf0b7&quot;,&quot;469777815&quot;:&quot;multilevel&quot;}\" data-aria-posinset=\"1\" data-aria-level=\"1\"><b><span data-contrast=\"auto\">Comprehensive Developmental Testing<\/span><\/b><span data-contrast=\"auto\">:\u202fAssessing developmental, cognitive, behavioral, and adaptive skill profiles of individuals with MPS.<\/span><\/li>\n<li data-leveltext=\"\uf0b7\" data-font=\"Symbol\" data-listid=\"85\" data-list-defn-props=\"{&quot;335552541&quot;:1,&quot;335559685&quot;:720,&quot;335559991&quot;:360,&quot;469769226&quot;:&quot;Symbol&quot;,&quot;469769242&quot;:[8226],&quot;469777803&quot;:&quot;left&quot;,&quot;469777804&quot;:&quot;\uf0b7&quot;,&quot;469777815&quot;:&quot;multilevel&quot;}\" data-aria-posinset=\"1\" data-aria-level=\"1\"><b><span data-contrast=\"auto\">Clinical Trials<\/span><\/b><span data-contrast=\"auto\">:\u202f Learn more about investigational therapies and opportunities to participate in clinical trials.\u202f<\/span><a href=\"https:\/\/www.med.unc.edu\/pediatrics\/muenzer-mps-center\/research-clinical-trials-2\/mps-clinical-trials\/\"><span data-contrast=\"none\">Learn\u202fabout clinical trials occurring at the Muenzer MPS Center<\/span><\/a><span data-contrast=\"auto\">.<\/span>\n<ul>\n<li style=\"text-align: left\" data-leveltext=\"\uf0b7\" data-font=\"Symbol\" data-listid=\"85\" data-list-defn-props=\"{&quot;335552541&quot;:1,&quot;335559685&quot;:720,&quot;335559991&quot;:360,&quot;469769226&quot;:&quot;Symbol&quot;,&quot;469769242&quot;:[8226],&quot;469777803&quot;:&quot;left&quot;,&quot;469777804&quot;:&quot;\uf0b7&quot;,&quot;469777815&quot;:&quot;multilevel&quot;}\" data-aria-posinset=\"5\" data-aria-level=\"1\">If you are interested in scheduling an appointment or connecting with our clinic team for specialized services, please visit the\u00a0<a href=\"https:\/\/www.med.unc.edu\/pediatrics\/muenzer-mps-center\/making-an-appointment\/\" target=\"_blank\" rel=\"noopener\">Appointment Page<\/a> to learn more about the services offered at the Muenzer MPS Research and Treatment Center.<\/li>\n<\/ul>\n<\/li>\n<\/ul>\n<p><img loading=\"lazy\" decoding=\"async\" class=\"aligncenter wp-image-3622 \" src=\"https:\/\/www.med.unc.edu\/pediatrics\/muenzer-mps-center\/wp-content\/uploads\/sites\/1312\/2024\/11\/244A4908-1024x768.jpg\" alt=\"\" width=\"695\" height=\"521\" srcset=\"https:\/\/www.med.unc.edu\/pediatrics\/muenzer-mps-center\/wp-content\/uploads\/sites\/1312\/2024\/11\/244A4908-1024x768.jpg 1024w, https:\/\/www.med.unc.edu\/pediatrics\/muenzer-mps-center\/wp-content\/uploads\/sites\/1312\/2024\/11\/244A4908-300x225.jpg 300w, https:\/\/www.med.unc.edu\/pediatrics\/muenzer-mps-center\/wp-content\/uploads\/sites\/1312\/2024\/11\/244A4908-768x576.jpg 768w, https:\/\/www.med.unc.edu\/pediatrics\/muenzer-mps-center\/wp-content\/uploads\/sites\/1312\/2024\/11\/244A4908-1536x1152.jpg 1536w, https:\/\/www.med.unc.edu\/pediatrics\/muenzer-mps-center\/wp-content\/uploads\/sites\/1312\/2024\/11\/244A4908-2048x1536.jpg 2048w, https:\/\/www.med.unc.edu\/pediatrics\/muenzer-mps-center\/wp-content\/uploads\/sites\/1312\/2024\/11\/244A4908-280x210.jpg 280w, https:\/\/www.med.unc.edu\/pediatrics\/muenzer-mps-center\/wp-content\/uploads\/sites\/1312\/2024\/11\/244A4908-600x450.jpg 600w\" sizes=\"auto, (max-width: 695px) 100vw, 695px\" \/><\/p>\n<h2>Milestones<\/h2>\n<p><span class=\"TextRun SCXW85617656 BCX0\" lang=\"EN-US\" xml:lang=\"EN-US\" data-contrast=\"auto\"><span class=\"NormalTextRun SCXW85617656 BCX0\">The generous $10 million gift from Vaughn and Nancy Bryson, both 1960 graduates of ΄σΟσ΄«Γ½\u2019s School of Pharmacy, will\u00a0<\/span><span class=\"NormalTextRun SCXW85617656 BCX0\">establish<\/span><span class=\"NormalTextRun SCXW85617656 BCX0\">\u00a0the Dr. Joseph Muenzer MPS Research &amp; Treatment Center. This center will focus on developing comprehensive care strategies for individuals affected by MPS. The Bryson<\/span><\/span><span class=\"TrackChangeTextInsertion TrackedChange SCXW85617656 BCX0\"><span class=\"TextRun SCXW85617656 BCX0\" lang=\"EN-US\" xml:lang=\"EN-US\" data-contrast=\"auto\"><span class=\"NormalTextRun SCXW85617656 BCX0\">\u00a0family<\/span><\/span><\/span><span class=\"TrackChangeTextDeletionMarker TrackedChange SCXW85617656 BCX0\"><span class=\"TextRun SCXW85617656 BCX0\" lang=\"EN-US\" xml:lang=\"EN-US\" data-contrast=\"auto\"><span class=\"NormalTextRun TrackChangeTextDeletion SCXW85617656 BCX0\">\u00a0<\/span><\/span><\/span><span class=\"TextRun SCXW85617656 BCX0\" lang=\"EN-US\" xml:lang=\"EN-US\" data-contrast=\"auto\"><span class=\"NormalTextRun SCXW85617656 BCX0\">committed $2.5 million to the University in 2021, later increasing their pledge to $10 million.<\/span><\/span><span class=\"EOP SCXW85617656 BCX0\" data-ccp-props=\"{}\">\u00a0<\/span><\/p>\n<p><a href=\"https:\/\/alumni.unc.edu\/news\/10-million-gift-to-establish-center-to-research-genetic-disorder\/\" target=\"_blank\" rel=\"noopener\">Vaughn and Nancy Bryson Pledge $10 Million Gift<\/a><\/p>\n<figure id=\"attachment_2315\" class=\"thumbnail wp-caption aligncenter\">\n<figure id=\"attachment_2315\" class=\"thumbnail wp-caption aligncenter\" style=\"width: 575px\"><img loading=\"lazy\" decoding=\"async\" class=\"wp-image-2315 \" src=\"https:\/\/www.med.unc.edu\/pediatrics\/muenzer-mps-center\/wp-content\/uploads\/sites\/1312\/2023\/05\/Donation-10M.jpg\" alt=\"\" width=\"565\" height=\"206\" srcset=\"https:\/\/www.med.unc.edu\/pediatrics\/muenzer-mps-center\/wp-content\/uploads\/sites\/1312\/2023\/05\/Donation-10M.jpg 345w, https:\/\/www.med.unc.edu\/pediatrics\/muenzer-mps-center\/wp-content\/uploads\/sites\/1312\/2023\/05\/Donation-10M-300x110.jpg 300w\" sizes=\"auto, (max-width: 565px) 100vw, 565px\" \/><figcaption class=\"caption wp-caption-text\">Vaughn and Nancy Bryson with Dr. Muenzer<\/figcaption><\/figure><\/figure>\n<h2><span style=\"color: #000000\">Muenzer MPS Center Grand Opening November 2, 2024<\/span><\/h2>\n<h2><img loading=\"lazy\" decoding=\"async\" class=\"wp-image-3621 aligncenter\" src=\"https:\/\/www.med.unc.edu\/pediatrics\/muenzer-mps-center\/wp-content\/uploads\/sites\/1312\/2024\/11\/244A4802-1024x768.jpg\" alt=\"\" width=\"695\" height=\"521\" srcset=\"https:\/\/www.med.unc.edu\/pediatrics\/muenzer-mps-center\/wp-content\/uploads\/sites\/1312\/2024\/11\/244A4802-1024x768.jpg 1024w, https:\/\/www.med.unc.edu\/pediatrics\/muenzer-mps-center\/wp-content\/uploads\/sites\/1312\/2024\/11\/244A4802-300x225.jpg 300w, https:\/\/www.med.unc.edu\/pediatrics\/muenzer-mps-center\/wp-content\/uploads\/sites\/1312\/2024\/11\/244A4802-768x576.jpg 768w, https:\/\/www.med.unc.edu\/pediatrics\/muenzer-mps-center\/wp-content\/uploads\/sites\/1312\/2024\/11\/244A4802-1536x1152.jpg 1536w, https:\/\/www.med.unc.edu\/pediatrics\/muenzer-mps-center\/wp-content\/uploads\/sites\/1312\/2024\/11\/244A4802-2048x1536.jpg 2048w, https:\/\/www.med.unc.edu\/pediatrics\/muenzer-mps-center\/wp-content\/uploads\/sites\/1312\/2024\/11\/244A4802-280x210.jpg 280w, https:\/\/www.med.unc.edu\/pediatrics\/muenzer-mps-center\/wp-content\/uploads\/sites\/1312\/2024\/11\/244A4802-600x450.jpg 600w\" sizes=\"auto, (max-width: 695px) 100vw, 695px\" \/><\/h2>\n\n<!-- iframe plugin v.5.2 wordpress.org\/plugins\/iframe\/ -->\n<iframe loading=\"lazy\" src=\"https:\/\/uncch.hosted.panopto.com\/Panopto\/Pages\/Embed.aspx?id=d749fae9-dcd1-42d3-804e-b22d010b0771&#038;autoplay=false&#038;offerviewer=false&#038;showtitle=true&#038;showbrand=true&#038;captions=true&#038;interactivity=all\" height=\"810\" width=\"1440\" style=\"border: 1px solid #464646;\" 0=\"allowfullscreen\" allow=\"autoplay\" aria-label=\"Panopto Embedded Video Player\" aria-description=\"Muenzer FB Video\" 1=\"&gt;&lt;\/iframe\" scrolling=\"yes\" class=\"iframe-class\" frameborder=\"0\"><\/iframe>\n\n","protected":false},"excerpt":{"rendered":"<p>The Muenzer MPS Research and Treatment Center at the University of North Carolina at Chapel Hill was\u00a0established\u00a0to advance research, treatment, and support for individuals with Mucopolysaccharidosis (MPS) and related lysosomal storage disorders. Founded in\u00a0November 2022, the Center was developed under the leadership of Dr. Joseph Muenzer, a pioneering expert in MPS, with a mission to &hellip; <a href=\"https:\/\/www.med.unc.edu\/pediatrics\/muenzer-mps-center\/about-us\/\" aria-label=\"Read more about About Us\">Read more<\/a><\/p>\n","protected":false},"author":3206,"featured_media":0,"parent":0,"menu_order":0,"comment_status":"closed","ping_status":"closed","template":"","meta":{"_acf_changed":false,"layout":"","cellInformation":"","apiCallInformation":"","footnotes":"","_links_to":"","_links_to_target":""},"class_list":["post-2998","page","type-page","status-publish","hentry","odd"],"acf":[],"_links_to":[],"_links_to_target":[],"_links":{"self":[{"href":"https:\/\/www.med.unc.edu\/pediatrics\/muenzer-mps-center\/wp-json\/wp\/v2\/pages\/2998","targetHints":{"allow":["GET"]}}],"collection":[{"href":"https:\/\/www.med.unc.edu\/pediatrics\/muenzer-mps-center\/wp-json\/wp\/v2\/pages"}],"about":[{"href":"https:\/\/www.med.unc.edu\/pediatrics\/muenzer-mps-center\/wp-json\/wp\/v2\/types\/page"}],"author":[{"embeddable":true,"href":"https:\/\/www.med.unc.edu\/pediatrics\/muenzer-mps-center\/wp-json\/wp\/v2\/users\/3206"}],"replies":[{"embeddable":true,"href":"https:\/\/www.med.unc.edu\/pediatrics\/muenzer-mps-center\/wp-json\/wp\/v2\/comments?post=2998"}],"version-history":[{"count":19,"href":"https:\/\/www.med.unc.edu\/pediatrics\/muenzer-mps-center\/wp-json\/wp\/v2\/pages\/2998\/revisions"}],"predecessor-version":[{"id":4095,"href":"https:\/\/www.med.unc.edu\/pediatrics\/muenzer-mps-center\/wp-json\/wp\/v2\/pages\/2998\/revisions\/4095"}],"wp:attachment":[{"href":"https:\/\/www.med.unc.edu\/pediatrics\/muenzer-mps-center\/wp-json\/wp\/v2\/media?parent=2998"}],"curies":[{"name":"wp","href":"https:\/\/api.w.org\/{rel}","templated":true}]}}